Stage one:
a) Formation of non-profit organisation and creation of website
b) Links to:
1. CRY UK
2. SADS America
3. Australian Heart Foundation
4. Compassionate friends.
c) A helpline and forum for bereaved families.
d) Memorial page.
f) Database and collation.
g) Donation link
Stage two
• Fund raising
• Marketing
• Raising awareness
• Extended family support
• Support network
• Workshops/retreats
• Experienced counseling team
• Education
• Research
Stage three:
• Detection and screening
• Mobile screening units/screening centers
• To educate EDs and GP's
• Awareness days in schools and work places
• Extensive media coverage
• Form a specialist medical team
• Educate and update the medical professional with the latest research
• Release new information via publication
• Produce information on “ The warning signs”.
Our future vision will be to fast track Coronary/Pathology services and have a dedicated Cardiac screening team. In conclusion we would use CRY, as our bench mark to excellence.
AIMS
To set a bench mark for all, young unexplained sudden deaths, to be investigated promptly.
a) Liaise and support the family.
b) The heart to be examined by a cardiac pathologist.
c) Genetic testing (if necessary) to be carried out on extended family.
d) Reliable database
• Screening center’s to be set up in Clinic's, providing free ECG,S and cardiac echo's.
• Mobile screening unit.
• Mass public awareness, through, radio, word and mouth, press, leaflets and media sources.
